I have really enjoyed doing this blog. It has given me a chance to find out a lot more about what kinds of things can happen when people go through things with it. Sometimes I have a hard time trying to get things figured out so I can write it. I am hoping I can keep it up after the class is done.
I would like to get some other pictures in it. I have a lot of different ones that I've been looking at. I have a class that I just finished using pictures. I'm going to keep working on that and try to get some of those on the blog.
I have some other topics that I want to get into my blog. I will keep looking at things to try to get more information on it for different topics. I still want to get more things about hydrocephalus. I would like to show more people the blog after the class is done. I have told people about the blog so I would like to make sure they get to see it.
I want to write a book with everything that I've been through in my life. This class has helped me a lot to get things straight so I can work on that. It has gotten a lot easier for me to get words out the way I want to.
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I think writing a book is a great idea! To be honest, before reading your blog, I didn't know Hydrocephalus even existed. I'm sure it'd be a great eye opener!
ReplyDeleteI am so glad that this blog project is helping you really organize your thoughts for your book. I cannot think of a more useful thing for you to learn about yourself from a writing class.
ReplyDeletePlease do let me know how I can be of help to you as you go forward with this blog and your book--even after the class is over!
Writing a book, what an awesome commitment! I would love to see more pictures that you want to put up. Your blogs have kept me interested. Not only has it been interesting but also educational. Before reading your blogs I did not even know there was such a thing as Hydrocephalus. Keep up the good work!
ReplyDeleteSara, thank you for the link to your blog. I'm learning a ton. I think the idea of a book is great - it would be eye-opening for many.
ReplyDeleteThanks for this blog. I'm 52 years old in a few weeks, but my hydrocephalus only became known to me in 2011. Previously, all that I've know was that I was born with a large head.
ReplyDeleteNow that I have an identified condition, I'm working through a lot of the issues you have identified in this blog (how should I be treated for the hydro, how should I manage the condition on a daily basis, what does the condition mean for my future, etc...).
It's just a pity that it took nearly 50 years for me to become aware of my condition. Speaking with my parents following my diagnosis, they explained that I was born with a form of spina bifida, which was able to be surgically repaired soon after birth. A side effect from this surgery was apparently the hydrocephalus. Again unfortunately, my parents explained that I was born in a time and place where authority figures (such as doctors) did not care to communicate well with ordinary folk (like my parents).
If I'd had the information I now have back when I was growing up, perhaps I might have been able to make different life choices.
Nevertheless, I am excited by the challenge that living with hydro now brings, and looking to reshape my life and my future on the basis of my new knowledge.
Thanks for the opportunity to provide a comment.
Steve
Lake Cathie
NSW
Australia
My daughter is 36 w hydro frontsl lobe damage. She cant think thru things., her higene is very bad, very lethargic many other proble ms. Is there any place I can go to talk to others about condition.
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